Emilee had appointments at TCH yesterday.
She actually played in her carseat for a little while and then fell asleep about 30 minutes before we got there so we had to wake her up to get out of the car.
All in all she saw four different doctors. We started out with the Craniofacial team for an appointment with the Surgeon and the Speech Therapist. That appointment went well and we have a surgery date for her palate repair. It's going to be the first week of June. Of course we completely forgot to ask about being off the bottle and all that fun stuff so I'll have to call their office back. We also had him look at the small cyst like thing under her tongue and he said that they would investigate it during the surgery. Hopefully it won't cause any other problems before then.
After these two appointments we then ate lunch and had to find our way to the next one. The theory that I had was we would only park once and then walk to the other building. I didn't know it was going to be raining for this little walk but that's ok. So we bundled Emilee up and out we went. Somewhere during the three block walk to the Smith Tower she fell asleep so the wait for the hearing test and ENT appointment went quietly.
We then had to wake her up for the hearing test. The first part of the hearing test was for pressure. She failed. =) There is suppose to be a peak at atmospheric pressure and her's was just a flat line. He said that this was typical of a child that had fluid on their ears. Then he did the hearing test where we sat in a sound proof room and he emitted sounds out of speakers at different levels to see when she heard it and turned to look at it. After that was over he said that she had about a 30 - 40 percent hearing loss but that it was again typical of fluid build up. We expected this to happen because of her palate. Once we mentioned the cleft palate he actually gave us an explanation for it. He said that the part of the ear that equalized the ear drum is attached to the palate. So... since she has the cleft when her ears try and equalize that 'value' can't be opened because that attachment part it missing. Which actually makes sense.
After the hearing test we then got to see the ENT. He of course wanted to look in her ears and she of course did not want him to look. So after holding her down and he cleared some wax out and then said that she had heavy fluid in there we discussed the tubes. He's ok with waiting until she has her palate repaired and that there wasn't a sense in taking her to the operating room twice if we didn't have to. Which of course I am completely ok with that as well. =)
After being held down she was so RED!
I guess that the day went well. I'm glad that we were able to get more than one appointment done it one day.
3 comments:
Cassie had tubes in her ears as well and we never had any problems with the tubes or her ears.
Thats exciting you have the surgery date set for the palate repair. Its not fun but its nice that it will be over and its neat to see how the tone of their voices changes once its closed. Also exciting to hear them create suction!!
We have our surgery dates at teh same time! hey has Emillee had any ear infections? I haven't ahd her ears checked out by ENT but she hasn't had any infections so the Pediatrician doesn't think she has fluid or needs tubes. I am just wondering if I should set up an ENT appointment just to make sure.
Rachel, She looks lovely as usual. Always bright and smiley.
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