Emilee had an appt with the Genetics Dept today at TCH. It went well. She was 20.3 lbs and 28 1/2 ins. They are still wanting to investigate the possibility of Stickler's Syndrome since it is so closely related to Piere Robin so she had to have her blood drawn again today. (The wait at the lab was much shorter than last time). The two test that they ran about six months ago came back normal, but this is a different one. She only cried for about ten seconds and then was fine. She just kept looking down at her bandage. We are also needing to schedule appts with TCH's opthamololgy and audiology departments so those are soon to come.
We were barely out of the parking garage before she was out.
Once we were back in Conroe we ate lunch with Granny Katie and Taylor. Then came home for some play time and an afternoon nap (me included). I had to take this next picture... she was sleeping so hard in one spot that she had the indention of her opposite toes on her leg. It's the red spot. You may be able to click on the picture to make it bigger. This just shows how happy she is after a nap. This picture was taken only minutes after she woke up. Just long enough for me to get her up and bring her downstairs. I love it!
AND... Happy Birthday Julie!
3 comments:
She is such a cutie!
Thank you! :)
Keep us posted on the blood results. I hope it all comes back well and her appointments also! At least you are getting the best medical care possible!
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